Patient Information

Patient Information

Essential Information and Resources for Spinal Cord Injury Patients

Dear,

We understand that adjusting to life after a spinal cord injury can be incredibly challenging. But please know that you are not alone. We are here to support you every step of the way. Our community is dedicated to helping you regain your independence and embrace your new journey with courage and hope. This new chapter in your life will come with its own set of trials, but also many triumphs. You will discover strengths you never knew you had, and you will find joy in the smallest victories. Remember, every step forward, no matter how small, is progress worth celebrating. Our team, along with fellow patients and their families, is here to provide the encouragement, resources, and companionship you need. We believe in your resilience and your ability to adapt and thrive. Together, we will navigate this journey, learning, growing, and celebrating each milestone.

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Please don’t hesitate to reach out to us whenever you need support, advice, or just a friendly ear. We are here for you, always.


With warmth and solidarity,

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Carlos Pardo

Strength and Faith Foundation

C4, C5 Quadriplegic since 2020

Understanding

Spinal Cord Injury (SCI)

A spinal cord injury (SCI) is damage to the spinal cord that results in a loss of function, such as mobility or feeling. The spinal cord is a crucial part of the central nervous system, which transmits signals between the brain and the rest of the body. When the spinal cord is injured, it disrupts these signals, leading to partial or complete loss of sensation and function below the site of the injury.

Causes

Spinal cord injuries can be caused by various factors, including:


Trauma: The most common cause of SCI is traumatic injury, often from:

  • Motor vehicle accidents
  • Falls
  • Sports injuries
  • Violence (e.g., gunshot or stab wounds)

Non-Traumatic Causes: These include medical conditions such as:

  • Tumors
  • Infections (e.g., spinal tuberculosis)
  • Inflammatory diseases (e.g., multiple sclerosis)
  • Degenerative diseases (e.g., arthritis)
  • Vascular disorders (e.g., aneurysms or strokes affecting the spinal cord)

Types:

Spinal cord injuries are classified based on the location and severity of the injury.


By Location:

  • Cervical (neck) injuries: These affect the arms, legs, and trunk. Injuries here can result in quadriplegia/tetraplegia, where there is loss of function in all four limbs.
  • Thoracic (upper back) injuries: These primarily affect the chest and legs, often leading to paraplegia, where there is loss of function in the lower limbs.
  • Lumbar (lower back) and Sacral (pelvic area) injuries: These mainly affect the hips and legs.

By Severity:

  • Complete SCI: No motor or sensory function is preserved below the level of injury.
  • Incomplete SCI: Some motor or sensory function is preserved below the level of injury. Incomplete injuries vary widely in their severity and manifestations.

The Road to Recovery

An overview of the stages of recovery and what to expect.

Recovering from a spinal cord injury (SCI) is a challenging journey with multiple stages. Understanding these stages helps patients and families navigate the process with realistic expectations.

STAGE 1

Acute Stage:

Timeline: Immediately after injury to several weeks


What to Expect:

  • Emergency Care: Stabilizing the patient and managing life-threatening conditions.
  • Surgery: To stabilize the spine, relieve pressure on the spinal cord, or repair tissues.
  • Critical Care: Intensive monitoring in a hospital to address complications like respiratory issues, infections, and blood clots.

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STAGE 2

Rehabilitation Stage

Timeline: Weeks to months post-injury



What to Expect:

  • Inpatient Rehabilitation: Comprehensive rehab in a specialized facility with physical and occupational therapy.
  • Goal Setting: Establishing realistic recovery and functional improvement goals.
  • Skill Development: Learning new skills and techniques to adapt to changes in mobility and daily living.

STAGE 3

Early Recovery Stage

Timeline: Months to a year post-injury


What to Expect:

  • Continued Therapy: Ongoing therapy to maximize recovery and independence.
  • Adaptation: Adapting to assistive devices like wheelchairs or braces.
  • Home Modifications: Making changes to ensure safety and accessibility at home.

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STAGE 4

Long-Term Recovery Stage

Timeline: Beyond one year post-injury


What to Expect:

  • Maintenance Therapy: Periodic sessions to maintain and improve strength and function.
  • Lifestyle Adjustments: Adapting daily routines, hobbies, and social activities.
  • Community Integration: Re-engaging with the community and participating in social and recreational activities.
  • Psychological Support: Ongoing mental health support to address emotional challenges.

Important Considerations

  • Patience and Persistence: Recovery requires patience, determination, and a positive mindset.
  • Support System: A strong network of family, friends, and healthcare professionals is crucial.
  • Adaptive Strategies: Utilizing adaptive strategies and technologies enhances independence and quality of life.
  • Health Monitoring: Regular medical check-ups and proactive health management are essential.


Every individual's recovery journey is unique, and progress may vary widely. With the right support and resources, individuals with spinal cord injuries can lead fulfilling and meaningful lives.

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Foundation Services and Resources

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Support Groups

Local and online options.

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Financial Aid

How to apply for assistance.

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Workshops and Webinars

Upcoming events.

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Mobility

Equipment & Therapy.

Inspirational Stories

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Carlos's inspirational story

December 26, 2019
Carlos's life took an unexpected turn when he suffered a spinal cord injury in a tennis game. What could have been the end of his dreams turned into the beginning of a remarkable journey of resilience and determination. Despite the severe injury that left him paralyzed from the waist down, Carlos refused to let his circumstances define him. Early Life and the Accident Carlos was an active and vibrant young man, deeply involved in sports and community activities. He had a promising career ahead of him, filled with aspirations and dreams. However, everything changed on a fateful evening when a fall in a tennis game resulted in a spinal cord injury, altering his life's trajectory. The Road to Recovery The initial days after the accident were filled with pain and uncertainty. The reality of his condition was daunting, but Carlos chose not to succumb to despair. Instead, he embarked on a rigorous journey of rehabilitation and therapy. With unwavering support from his family and friends, he began to adapt to his new reality. Every small victory in his recovery process became a testament to his unyielding spirit. Embracing Resilience Carlos's resilience was not just about physical recovery; it was about reclaiming his life and purpose. He immersed himself in learning about spinal cord injuries, understanding the challenges, and finding ways to overcome them. His determination led him to explore various therapies, both conventional and experimental, always pushing the boundaries of what was possible. Giving Back to the Community Carlos's journey of recovery inspired him to serve others facing similar challenges. He became a vocal advocate for spinal cord injury awareness, sharing his story to inspire and motivate others. Carlos began volunteering with organizations dedicated to supporting spinal cord injury patients, offering his experience and empathy to those in need. A Life of Purpose Today, Carlos continues to inspire and empower others. His life is a testament to the power of resilience, determination, and the will to overcome. Through his efforts, he has not only reclaimed his own life but has also become a source of strength and inspiration for countless others facing similar challenges.  Carlos's story is a reminder that even in the face of adversity, the human spirit is capable of extraordinary feats. His journey of recovery and service is a shining example of how resilience and determination can transform lives and create a lasting impact on the community.
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